Privacy Law Library

Direct-to-Consumer Genetic Testing Privacy (P.A. 26-64, ss. 17-19)

CT DTC Genetic Privacy

Genetic · Health

Gives consumers a property right in, and exclusive control over, their biological samples and genetic test results held by direct-to-consumer genetic testing companies. Companies must obtain express consent for collection, use, transfer, secondary use and sample retention, may not share genetic data with employers, insurers or marketers, and must let consumers access and delete data and destroy samples.

Where

Connecticut

Citation

P.A. 26-64, ss. 17-19 (not yet codified)

Status

Enacted, not yet in force

In force since

2026-10-01

Enforced by

Connecticut Attorney General (solely; P.A. 26-64, s. 19(b))

People can sue

No

Penalties

Violations are CUTPA unfair or deceptive trade practices enforced solely by the Attorney General (up to $5,000 per wilful violation under 42-110o); no private action under 42-110g.

Applies to

• Direct-to-consumer genetic testing companies doing business in Connecticut that offer genetic testing directly to consumers or collect, use or analyze genetic data consumers provide; excludes licensed health care providers ordering tests for a medical purpose (s. 17(4))
• Protects any individual physically present in Connecticut who receives or may receive genetic testing (s. 17(2))