Direct-to-Consumer Genetic Testing Privacy (P.A. 26-64, ss. 17-19)

CT DTC Genetic Privacy
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Gives consumers a property right in, and exclusive control over, their biological samples and genetic test results held by direct-to-consumer genetic testing companies. Companies must obtain express consent for collection, use, transfer, secondary use and sample retention, may not share genetic data with employers, insurers or marketers, and must let consumers access and delete data and destroy samples.

Jurisdiction

Connecticut

Jurisdiction Type

state

Country

United States

Effective Date

10/1/2026

Enforcing Authority

Connecticut Attorney General (solely; P.A. 26-64, s. 19(b))

Fines Under This Regulation

0

Total Fine Amount (USD)

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