Genetic Information Privacy Act
GIPARegulates direct-to-consumer genetic testing companies. It requires plain-language privacy notices, separate express consent for each use, storage, transfer, and marketing use of genetic data or samples, reasonable security, and ways for consumers to access and delete data and have samples destroyed. It also bars sharing genetic data with health, life, disability, or long-term care insurers or employers.
Jurisdiction
California
Jurisdiction Type
state
Country
United States
Effective Date
1/1/2022
Enforcing Authority
California Attorney General, district attorneys, and specified city attorneys; also on complaint of a person who suffered injury and lost money or property
Fines Under This Regulation
0
Total Fine Amount (USD)
--